It is summer time which means my house is a mess and my fridge is empty. I spend the last months of the school year praying for summer and all of summer praying for school to start early. It’s a vicious cycle. I haven’t written in awhile due to extreme exhaustion and well laziness. So here is a recap and where we are at now.
Conrad’s OT quit in March. The backup OT also quit. I would spend the next 3 months being told it would be two more weeks and another week and another week. It was frustrating and my stress level was at an all time high. My biggest concern was regression. We had made so much progress and he craves routine.
Conrad did regress. He started biting and pinching. He’s a big fan of hair pulling. He would walk in circles repeatedly sometimes in the mornings for hours at a time. Conrad is also a big boy and very strong. He is in the 100th percentile for his weight and height. He is 2 but looks more like 4. And he can pack a wallop. The first month of no OT was rough to say the least.
But as his behavior went to the birds he started to make gains in other areas more specifically language. Conrad’s ability to mimic still surprises me. On occasion he will repeat sounds with such precision I’m thrown for a loop. Often having to convince myself that I just didn’t imagine it. Conrad hasn’t followed the normal progression for language. He didn’t make sounds that eventually transformed into words. He will just randomly pick up a word.
Today his vocabulary consists of:
Ma, Bubba, What is that, Oh no, Hello, No, Bye, and the one word that has helped him the most more. He will point to the sink and say more when he wants drink. He will go to the fridge and tell you more when he wants food. He will also give you a very clear no if you give him the wrong thing.
He is fully engaged with us. His favorite game is to pretend to fall. He will reach out his hand for help and say oh no. It is adorable. Penelope is still his preferred playmate. He has yet to develop interest in other children but has made huge gains with us socially.
Conrad is not a big fan of baths. He will however help dress himself and fetch his shoes to play outside. He’s not the best at brushing his teeth but will happily let you assist him. He has a steady diet of yogurt and clementines. He hates macaroni and cheese and will not touch cold meats.
Two weeks ago Conrad started OT again. So far he has been reasonable and ready to play. Though the newness is starting to wear off his new OT seems to be well prepared for his temperament.
Yesterday was his 6 month re-evaluation for therapy services. He had met 4 of his 8 goals. Which for not having an OT for 3 months I would call that pretty darn good. However as he gets older there are more milestones he is not meeting. It feels like a never ending game of catch up.
My previous blog regarding Conrad was titled Autism is kicking my ass. Some days it still kicks all of our asses. And other days we kick ass. As we continue on this journey it hasn’t become easier but it has become our normal. It is part of who we are but not what we are.
Our son is Conrad. He is affectionate, funny, a little rowdy, and he has autism.